Expecting a lot more of these smiles, now that Rafael is home again.
After a month and a half bed-bound at Methodist Children's, Rafael Garcia and his mother and sister are home. At last.
You may remember Rafael, who suffers from the degenerative disorder known as spinal muscular atrophy, was admitted after a nasty bout of pneumonia recently.
If you read my story, You Kill Me, you know about the family's long fight for home health care and their pledge to not leave the hospital this round until that care was under contract for Rafael. How the tables turned on the family, and they were subjected to investigation by Child Protective Services and rounds of psychiatric testing. About Rafael coming down with pneumonia and lung infection thanks to his extended hospital stay. All the nasty things readers had to say about Yvonne (or me). About the threatening phone calls my boss had to field from the hospital's public relation apparatus. (Wait. I didn't tell you about those last few. No matter.)
Well, it appears the family has navigated the worst pitfalls and snares of the medical scene and returned home safe and mostly sound yesterday â?? with home care in tow.
All I can say is good work and congratulations to this tenacious family. They fought through more than a year of private medical black-balling (and then some) and lived to tell about it.
Much love to each of you.
Rafael, I'll see you soon for deep-in-the-couch bleary-eyed video gaming!